In the third of a series of interviews since full-time ME/CFS advocate Emily Taylor joined Solve ME, I talked to her about what the heck is going with advocacy. I learned a lot. In particular, I learned there’s a lot going on that I didn’t know about....
Did the FDA mess up the biggest fibromyalgia drug trial ever? The trial authors propose that changes the FDA made doomed the putative replacement for Lyrica called mirogabalin - and could impair future drugs from becoming approved.
A 7-year study found approximately a 1% rate of childhood chronic fatigue syndrome in Chicago with higher rates in girls, in children from ethnic/racial minorities, and in adolescents. Only 5% of the children had been diagnosed. The results suggests that 555,000 children in the U.S, could have ME/CFS, 525,000 who have not been diagnosed - a situation Leondard Jason called a "national disgrace".
There’s a big elephant in the room in both fibromyalgia (FM) and chronic fatigue syndrome (ME/CFS) and it’s women. The fact that a lot more women than men have these diseases must mean something, yet except for Dr. Klimas’s and Gordon...
It was a project birthed in hope. Pal Schaathun, a Norwegian filmmaker would document what he hoped might be the end of chronic fatigue syndrome (ME/CFS). That, unfortunately, turned out not to be but Schaathun ended up documenting – in strikingly beautiful...
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