More Musing on Malaise
If ‘malaise’ doesn’t adequately describe my dreadful condition after too much exertion, it does fit another consequence of ME/CFS. After so many years of trying to pace myself successfully (whatever that means, since my over-taxed level seems to change from...
Why Are Doctors Skeptical & Unhelpful about Chronic Fatigue Syndrome? Pt I
(Thanks to Julie for allowing Health Rising to reprint her original blog posted on The Last Word on Nothing) Eight years ago, collapsed on a neurologist’s examining table, I asked a naive question that turned out to be at the center of a controversy continuing to this...
From International Traveler to 43 Square Meters: An ME/CFS Story From Sweden
(Anne’s is a difficult story but it’s a good story in a way because it demonstrates the full force of this illness. Anne’s story is reminiscent of Jenn Brea, Jamison Hill and Mary Dimmock’s son’s stories. Each was a young adult with not...
Is It Time To Give Up Trying Pt. II: Breaking the Addiction for a Cure
“I do not hope for a cure or a radical positive change in my condition; instead I believe in the possibility of pleasurable moments.” Carol Lefelt I am overwhelmed by the large number of responses to my last piece about reaching the age of 70 and feeling...
Persisting Without Exception: An Interview with Andrea Whittemore-Goad
Prelude Opinions about the Whittemore-Peterson Institute post-XMRV run the gamut from appreciation to anger. In this prelude to the interview, which is not about those issues, I offer up some thoughts. Every organization from the OMI to the CFIDS Association, from...Lives Interrupted Latest Story
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