by Carol Lefelt | Mar 26, 2015 | Homepage, Stories
If ‘malaise’ doesn’t adequately describe my dreadful condition after too much exertion, it does fit another consequence of ME/CFS. After so many years of trying to pace myself successfully (whatever that means, since my over-taxed level seems to change from...
by Carol Lefelt | Mar 7, 2015 | Homepage
So The Institute of Medicine has complicated and expanded the terminology wars with its recent report suggesting Systemic Exertion Intolerance Disease as a more accurate name. I don’t like it much more than I don’t like Chronic Fatigue Syndrome, but I recognize the...
by Carol Lefelt | Jan 11, 2015 | Homepage
I am surprised by my ambivalent response to the current media attention paid to Laura Hillenbrand. I found her book “Unbroken” riveting; I don’t read much non-fiction, but I loved the way Hillenbrand adopted fiction-like techniques to tell this story. She incorporated...
by Carol Lefelt | Oct 3, 2014 | Homepage
How Do I Know What’s Wrong, When I Always Have CFS? The recent headaches started about two weeks before the stomach pain. My head seemed filled with cat litter. A woozy scratchy aching, either all over at once or in selected locations, on top, in back, in front. A bit...
by Carol Lefelt | Sep 11, 2014 | Homepage
I’ve been reading about the “Glutathione Depletion – Methylation Cycle Block Pathogenesis Hypothesis for CFS” since forever, it seems, and finally did the MTHFR test. Result: a homozygous mutation in the C677T gene (two copies of the C677T mutation) as well as a...
