Secretary of Health Kathleen Sebelius responded to Senator Reid’s inquiries with the letter below. The Secretary’s letter outlines increased coordination by federal health agencies on ME/CFS. The proof of whether federal agencies take ME/CFS more seriously will be reflected in whether they fund more scientific studies, promote clinical trials and approve medicines and treatments for ME/CFS patients in the immediate term.
All eyes are on the FDA scientific and stakeholder workshop in April which will provide the first test of this increased coordination.
When a major breakthrough in understanding or treating ME/CFS or FM takes place you’ll hear about it quickly and completely on Health Rising. Just $5 dollars a month – an amount most people wouldn’t notice – from enough people will keep us on the web and publishing. You won’t notice the $5 but we will. Find out more here.