Dennis shook up the NIH big time when he was there…and then he was gone – but his commitment to ME/CFS remained. Find out what he’s been up to in the interview
Dennis Mangan was like a whirlwind at the NIH in the two years he was in charge of the ME/CFS program at the Office of Research For Women’s Health (ORWH). First he created a listerv to better communicate with the patients, then he changed the website, then he changed the name to ME/CFS, then, in collaboration with patients he created the ‘State of the Knowledge’ Workshop – the first major NIH workshop on chronic fatigue syndrome in almost ten years.
Under Dennis, the Chronic Fatigue Syndrome Working group, which hadn’t met in a year, was enlarged and revitalized. Throughout, Dennis communicated and communicated and communicated….and then, he was gone in late 2011 – taking early retirement to deal with a family situation.
Dennis promised to stay involved with chronic fatigue syndrome (ME/CFS) and he has. Now, as he joins the Board of the Simmaron Research Foundation, I asked about his time at the NIH, what changed since he first came on board there, why he’s still heavily involved with ME/CFS, the IOM controversy and more.
Health Rising’s Quickie Summer Donation Drive is On!- Check out a talk with Dennis Mangan on Simmaron Rising
” What patients might not realize is that researchers also need hope and encouragement to move forward. I encourage all of us to offer researchers a few kind words of support and to inspire them to keep working on the illness.”
Cort… The 35 experts have received nothing but gratitude, kind words and unconditional support! What more can we do?! Or which researchers are we talking about here…
Cort, I am getting a trojan horse warning whenever I try and access your links to Simmaron or try and go to Simmaron Rising directly. Not sure what’s going on mate.
Hi Cort, I too am getting that there is a Trojan horse when I go from the link from the page and also via the email sent with the links to my email address. I cannot get this article up because of a Trojan warning.
I hope it can be fixed, really looking forward to reading this article.
Thanks, Lynn
I think Dennis Mangan was too honest and too ethical for the NIH. He probably came to know THAT, and WHY, the NIH and CDC have a hidden agenda for disappearing mecfs and was unable to just go along and get along.
Thanks goodness for those very few people like him! Wish we could get an ethics transplant for the likes of Unger and Vernon.