What do you do if you have a disease which has few clinical trials but lots of patients needing help, and 30 or so practitioners with decades of experience under their belts?
Instead of waiting for a clinical trial to get underway (or not) you ‘tap their intuition’; i.e. you design a survey designed to detect what they think works in ME/CFS.
That’s what the The CFIDS Association (whoops) – Solve ME/CFS Foundation – did. They invited about 30 ME/CFS experts (Dr’s Jose Montoya, Øystein Fluge, Katherine Rowe, Carl-Gerhard Gottfries, Nancy Klimas, Peter Rowe, Italo Biaggioni plus about 20 more) to tell them how. Fifteen ended up telling them:
- How effective the drugs they used were
- What kind of alternative treatments worked
- How they strategized their treatment approaches; i.e., which symptoms did they treat first? Which symptoms were related?
The results are coming soon. Find out more here.