“There is no therapy based on physical activity or exercise that is effective as a treatment or cure for ME/CFS”. NICE Who would have thought? We knew that National Institute for Health and Care Excellence (NICE) – the executive branch in the U. responsible for...
H.R. 7057 – The Understanding COVID-19 Subsets and ME/CFS Act is back. There’s a reason this is taking so long. It’s the same reason that it’s taken 4 years of work to get to this point. This is not just an attempt to get more money for ME/CFS:...
The #MEAction post (retitled after I calmed down to “#MEAction’s Support Needed On Bill to Increase NIH Funding”), has stirred up a lot. Boy, did it stir up a lot. It was understandable; the post was, after all, composed in quite a state of heat. I...
Health Rising readers have gotten quite a few blogs on the effort to get Congress to dramatically increase NIH funding for ME/CFS (HR 7057) – and here’s one more. As so often happens, something has unexpectedly come up – and time is short. Congress...
Please note this is an action for U.S. residents. HR 7057: The Understanding COVID-19 Subset and ME/CFS Act HR 7057 is the ME/CFS community’s first ever attempt to fulfill a dream: a House Congressional bill that begins to address the decades of neglect from the...
Opportunity and Danger It’s getting to crunch time. This is a time of both opportunity and a time of danger. The coronavirus situation – as tragic as it is – is nevertheless providing a unique opportunity for the chronic fatigue syndrome (ME/CFS) field. It presents...
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