The big National Institutes of Health (NIH) effort on long COVID is rolling. It hasn’t come easily or quickly and the NIH has a lot of catching up to do. The world has known long COVID is a serious problem since last summer, but you wouldn’t have known it...
The Hunt for More Funding For ME/CFS This is the fourth in a series of blogs on advocacy topics as we enter into the prime advocacy period of the year. Study Finds ME/CFS Most Neglected Disease Relative To Its Needs ME/CFS Experts Speak Out in #MEAction’s Long Covid...
This is the third in a series of blogs on advocacy topics as we enter into the prime advocacy period of the year. ME/CFS Experts Speak Out in #MEAction’s Long Covid Media Conference Time to Strike! Sign Up for a Monumental Virtual Lobby Day “America’s...
Virtual Lobby Day and Lobby Week is fast approaching, but this is not your average Lobby Day. In fact, we may not see its like again. The stars have finally been aligning for us. Long COVID is a hot subject – it just got over a billion dollars in funding....
No reliable diagnostic criteria, no validated treatments, controversial, lots of people affected … paltry funding. It sounds like chronic fatigue syndrome (ME/CFS) but it’s actually post-treatment or chronic Lyme disease. The numbers are similar (about...
The Long COVID Funding The 2020 COVID-19 Economic Relief bill had been months and months in the making, and while Emily Taylor, the lead advocate for the Solve ME/CFS Initiative (Solve M.E.), had publicly shared nothing, she was keeping a very close eye on the long...
