No reliable diagnostic criteria, no validated treatments, controversial, lots of people affected … paltry funding. It sounds like chronic fatigue syndrome (ME/CFS) but it’s actually post-treatment or chronic Lyme disease. The numbers are similar (about...
The Long COVID Funding The 2020 COVID-19 Economic Relief bill had been months and months in the making, and while Emily Taylor, the lead advocate for the Solve ME/CFS Initiative (Solve M.E.), had publicly shared nothing, she was keeping a very close eye on the long...
ME/CFS scores as a large study cements the link between it and long COVID just after over a billion dollars is slated to go for long COVID research “The findings show that—even in those people who don’t require hospitalization for severe COVID-19—the...
Emily Taylor of Solve ME/CFS Initiative reported that Congress has approved $1.15 billion (yes that’s a billion with a “B”) for the NIH to fund long-COVID research and clinical trials. $100 million will specifically be used for the rapid acceleration...
The National Institutes of Health (NIH), with its pitiful funding, has been a thorn in the ME/CFS community’s side for decades. For decades advocates have thrown everything they could – heartbreaking stories, demonstrations, insults – at the NIH in...
Beginnings In 2016, Vicky Whittemore asserted before NANDSC (the National Advisory Council for the Institute for Neurological Disorders and Stroke (NINDS)) that a desperate need existed to bolster research for chronic fatigue syndrome (ME/CFS). (NANDSC Council is the...
