by Cort Johnson | Feb 16, 2019 | Advocacy, Homepage, NIH
“We’re saying that ME/CFS is a program priority now…..Give us a chance to prove we’re serious – because we are.” Francis Collins “We recognize and empathize with the suffering experienced by people with ME/CFS and their frustration that so little is known... 
by Cort Johnson | Feb 12, 2019 | Homepage, NIH
Conferences are exciting because they’re virtually the only place one can go to learn about breaking research. The NIH ME/CFS conference, with its bevy of new faces that’s taking place on the NIH campus itself on April 4th and 5th, certainly fulfills that... 
by Cort Johnson | Sep 17, 2018 | Advocacy, Homepage, NIH
“I think some people are angry for good reason. This disease hasn’t gotten enough attention.” Vicky Whittemore My partner and I made our way to Vicky Whittemore’s office in a building off the NIH campus. Security was tight as always. We signed in... 
by Cort Johnson | Jun 20, 2018 | Fibromyalgia, Fibromyalgia and Pain, Homepage, NIH, Opioids, Research
The HEAL Initiative (Helping End Addiction Long Term) is one of the rare NIH initiatives that presents real possibilities for a long neglected population. It took an act of Congress – which gave the NIH $500 million and specifically directed them to use it attack... 
by Cort Johnson | Mar 10, 2016 | Advocacy, Homepage, NIH, Research
The NIH held a telebriefing with about 100 ME/CFS advocates, researchers and supporters Tuesday morning. This overview is taken from my notes of the meeting. The Big Three – Dr. Francis Collins, Dr. Koroshetz and Dr. Nath – were all there – and that... 
by Simon McGrath | Mar 6, 2016 | Autonomic Nervous System, Brain, Exercise, Gut, Homepage, Immune, NIH, Research
Thanks to Simon and MEAction for allowing Health Rising to post Simon’s exposition of the truly remarkable chronic fatigue syndrome (ME/CFS) study about to take place at the NIH. This blog first appeared on MEAction. Most images and captions were added by me...
