From the beginning, the RECOVER Initiative has focused on building out the massive infrastructure needed to follow and study approximately 18,000 participants. Hundreds of millions of dollars have been spent creating the main thrust of the Initiative. About a year...
This is a response to Alice’s thoughtful blog, “No, long COVID is not helping ME/CFS – and we should stop pretending that it is…” No, Long Covid is Not Helping People with ME… Alice’s blog was carefully written. She wrote,...
Suzanne Vernon’s interest in pathogens and post-infectious diseases goes back to when, as a 20-year-old, she landed a work-study job at the CDC’s Division of Vector-Borne Diseases while an undergraduate at Colorado State University. Ten years later with...
With its more remarkable funding, the NIH should be leading the hunt to solve long COVID. Thus far, though, it’s in the rear of the pack. The NIH’s history with post-infectious diseases like chronic fatigue syndrome (ME/CFS) carries so much baggage, and is...
Avindra Nath reports the intensive NIH intramural ME/CFS study achieved its goal: finding consistent biological abnormalities that point to possible treatment options. You might be forgiven for thinking that #MEAction is “just” an advocacy organization....
It’s wild times, indeed. Sometimes it seems like the earth is shifting beneath our feet. Other times it feels like it’s standing still. It’s good times for long COVID, though, as the future just got a bit brighter. As many people with long COVID...
