Avindra Nath reports the intensive NIH intramural ME/CFS study achieved its goal: finding consistent biological abnormalities that point to possible treatment options. You might be forgiven for thinking that #MEAction is “just” an advocacy organization....
It’s wild times, indeed. Sometimes it seems like the earth is shifting beneath our feet. Other times it feels like it’s standing still. It’s good times for long COVID, though, as the future just got a bit brighter. As many people with long COVID...
The NIH recently found a way to kick the chronic fatigue syndrome (ME/CFS) community in the teeth again. Jack Reacher couldn’t have done it any better. You have to give it to the NIH: they’re nothing if not masters of disappointment. Almost five years ago...
The big National Institutes of Health (NIH) effort on long COVID is rolling. It hasn’t come easily or quickly and the NIH has a lot of catching up to do. The world has known long COVID is a serious problem since last summer, but you wouldn’t have known it...
The Hunt for More Funding For ME/CFS This is the fourth in a series of blogs on advocacy topics as we enter into the prime advocacy period of the year. Study Finds ME/CFS Most Neglected Disease Relative To Its Needs ME/CFS Experts Speak Out in #MEAction’s Long Covid...
This is the third in a series of blogs on advocacy topics as we enter into the prime advocacy period of the year. ME/CFS Experts Speak Out in #MEAction’s Long Covid Media Conference Time to Strike! Sign Up for a Monumental Virtual Lobby Day “America’s...
