Long COVID, ME/CFS and the Trump Administration: Where We Stand Now
Geoff’s Narrations The Blog The GIST The GIST is on the bottom right “May you live in interesting times” Apocryphal Chinese curse We’re living in interesting times, that’s for sure. This blog attempts to gauge the state of ME/CFS,...
Jen’s Rinvoq ME/CFS Recovery Pt. II: JAK Inhibitors in ME/CFS and Long COVID
Jen X’s remarkable and full recovery from a long-term case of severe ME/CFS using Rinvoq, otherwise known as upadacitinib, has put it and the other “citinib” drugs in the spotlight. This blog takes a deeper dive into what happened and what’s going on with these drugs…
Changing the World: the Fight for the Long COVID Moonshot Bill Begins
The long COVID Moonshot bill provides a new future for long COVID, ME/CFS, POTS and post-treatment Lyme disease patients.
NIH Smacks the ME/CFS Research Centers: Plus a Warning for Long COVID – and an Opportunity for Both
ME/CFS was looking pretty darn good a couple of months ago. Led by Vicky Whittemore and Joesph Breen from the NIH, and Lucinda Bateman and Maureen Hanson, ME/CFS experts spent hundreds, if not thousands, of hours over the past year painstakingly preparing an...
A Long COVID / ME/CFS Moment Featuring NIH Director Monica Bertagnolli
In a surprise, Monica Bertagnolli, the new head of the NIH, sat down with a long COVID and ME/CFS investigative journalist to discuss the two diseases.StudyME
Enroll in the OMF’s StudyME project and help bring about a cure for ME/CFS, fibromyalgia, POTS and long COVID.
