Jen’s Rinvoq ME/CFS Recovery Pt. II: JAK Inhibitors in ME/CFS and Long COVID
Jen X’s remarkable and full recovery from a long-term case of severe ME/CFS using Rinvoq, otherwise known as upadacitinib, has put it and the other “citinib” drugs in the spotlight. This blog takes a deeper dive into what happened and what’s going on with these drugs…
Changing the World: the Fight for the Long COVID Moonshot Bill Begins
The long COVID Moonshot bill provides a new future for long COVID, ME/CFS, POTS and post-treatment Lyme disease patients.
NIH Smacks the ME/CFS Research Centers: Plus a Warning for Long COVID – and an Opportunity for Both
ME/CFS was looking pretty darn good a couple of months ago. Led by Vicky Whittemore and Joesph Breen from the NIH, and Lucinda Bateman and Maureen Hanson, ME/CFS experts spent hundreds, if not thousands, of hours over the past year painstakingly preparing an...
A Long COVID / ME/CFS Moment Featuring NIH Director Monica Bertagnolli
In a surprise, Monica Bertagnolli, the new head of the NIH, sat down with a long COVID and ME/CFS investigative journalist to discuss the two diseases.
Shooting for the Moon: The $11 Billion Long COVID / ME/CFS / POTS / Lyme Moonshot
An $11 billion dollar moonshot for long COVID, ME/CFS and other post-infectious diseases… Now that’s real money! The Patient-Led Research Collaborative for Long COVID called the “The Long COVID Research Moonshot Act of 2024” a “historic...StudyME
Enroll in the OMF’s StudyME project and help bring about a cure for ME/CFS, fibromyalgia, POTS and long COVID.
