The NIH should be releasing it’s increased funding for chronic fatigue syndrome (ME/CFS) soon. As we wait for that let’s take a look at several things that have happened in the last month and assess where we are, and what we have learned. The first thing...
“We are going to ramp this up.” Francis Collins Should you attend the MillionsMissing protest for more funding? Consider this. It’s been almost a year since NIH Director Francis Collin’s pledge to greatly expand chronic fatigue syndrome...
The issue at stake was a big one. It asked whether changes to the original protocol of the PACE trial ended up stacking the deck. It was easy to see how they might have; some of the recovery criteria were so weird as to seem ridiculous. The changes in the studies...
“…science has taken a turn towards darkness” Richard Horton, editor of the Lancet The latest PACE controversy started with a simple invitation from Richard Horton, the editor of The Lancet – to 42 signers of a letter requesting that an...
VIcky Whittemore and Dr. Koroshetz head the Trans NIH Working group for ME/CFS which is leading the charge to reinvigorate chronic fatigue syndrome (ME/CFS) research at the NIH. As the largest research funder in the world NIH funded research plays a major in the...
NIH is asking the ME/CFS community what future research should be done. We are submitting a request to have NIH fund clinical trials for ME/CFS starting with Ampligen, as the only medication close to approval in the FDA pipeline. If you want to add your name to this...
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