Question: When does a graded exercise study explain why graded exercise is not helpful for chronic fatigue syndrome (ME/CFS)? Answer: when it employs an exercise test with it. Just as NICE was pulling back on graded exercise therapy (GET) a GET study was...
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The Lancet — one of the most highly regarded journals in the world — is back on the chronic fatigue syndrome (ME/CFS) community’s front page. That’s probably enough to either elicit curses from ME/CFS patients or to produce a strong desire to...
The issue at stake was a big one. It asked whether changes to the original protocol of the PACE trial ended up stacking the deck. It was easy to see how they might have; some of the recovery criteria were so weird as to seem ridiculous. The changes in the studies...
This has a been good week for advocacy. It’s showing that smart advocacy works. Twice advocates went straight back into “the system” looking for results and twice – once with the PACE trial and here with AHRQ report in the U.S. – they...
The PACE trial has taken its hits – plenty of them but it’s never taken a hit like this – a full blown critique by the head of a statistical organization. With it’s publisher Lancet still deflecting inquiries the PACE trial is still alive but...
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