P2P Report on Chronic Fatigue Syndrome Delayed After Irregularities Found
Jenny Spotila pauses the P2P report on ME/CFS when she finds that many public comments were never forwarded to the P2P panel.
Eyes on the Prize: NIH Spending On ME/CFS in 2014
Jennie Spotila finds the NIH funded some very good chronic fatigue syndrome studies in 2014 but that it only spent about $5 million
Former NIH Official Says Chronic Fatigue Syndrome Program Must Move In Order to Succeed
Former ME/CFS Chief Dennis Mangan says that in order to thrive the chronic fatigue syndrome program must do one thing - find a home at an Institute
Hearing Requested for Denial of Treatment For ME/CFS
treatment for me/cfs, advocacy, me, cfs, SEID, congress hearing,
A New Name For Chronic Fatigue Syndrome? The Community Weighs In
About 4500 people saw the survey and about 550 took it. The survey consisted of a ranking mechanism that allowed the participants to rank their favorite names from first to last. The survey tool from Gravity Forms then produced an aggregate score. Survey Round I ME...StudyME
Enroll in the OMF’s StudyME project and help bring about a cure for ME/CFS, fibromyalgia, POTS and long COVID.
