As we enter a second month of a more or less complete shutdown of the economy, a burning question arose – what the heck was going on with our precious chronic fatigue syndrome (ME/CFS) research? Was it stuck in neutral or proceeding? Had our researchers, like...
It was a typically warm July southern Florida day as we pulled out of our hotel to find one exit blocked by construction. Google Maps sent us in another direction, and when that didn’t work out, we made our own map and, once again, hurried with time running out...
In June, on our East Coast trip, my partner and I met up with Dan Moricoli in Palm Beach, Florida. I’d been corresponding on and off with Dan for at least ten years. In the late 2000’s, Dan had created the public CFS/Knowledge Center and the private ME/CFS Community...
It’s a bold idea. Get people with chronic fatigue syndrome to contribute their 23andME or Ancestry.com data and the researchers will do the rest. Nancy Klimas’s project at the Institute for Neuroimmune Medicine at Nova Southeastern University ultimately...
A Little History Given our vaunted insularity, many in the U.S. may not know of the role Canada and Canadian figures have played in ME/CFS. The Canadian influence has been strong and it’s growing. So far as I can tell and I’m no expert the Canadian...
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