Looking back,...what would YOU have done differently to improve your life with ME/CFS?

Looking back,…what would YOU have done differently to improve your life with ME/CFS?

The Community Reports

We probably all have those head-slap moments when ask ourselves (later) “What was I thinking”? In the second blog in the Community Reports series we ask “If you knew what you know now, what would you have done differently in the course of your ME/CFS?”.

The Community Reports series mines the depth and experience of the ME/CFS community to get ideas that can help newbies, relative newbies and even longtime patients feel better in their daily lives.  We plough through the answers each blog brings and produce a Community Report that will hopefully help us all learn from the mistakes and wins of others in the community. The reports can be found in the Community Reports section of the website and will updated as more people post to them.

As the poet Gary Snyder says….

when you get it right

you pass it on..

So……onto the question..

“If you knew what you know now, what would you have done differently in the course of your ME/CFS?”

What can you pass on from your time with ME/CFS that might help others?  From activity management to doctors to finances to relationships to treatments – what have you learned through your journey with ME/CFS?


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A Run For His Son: An ME/CFS Parent Steps Out

alex ribaroff chronic fatigue syndrome

Learn how a 67 year old retiree and his wife felt compelled to lace up his running shoes and get into action to support their son – and everyone else with this disease in A Run For His Son…and Everyone

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