I wonder if there’s another website like How to Get On on the web. I highly doubt it. Sleepy Girl’s How to Get On, a website devoted to “How to Have a Great Disabled Life” is one of the most sheerly valuable sites I’ve ever come across....
The AMMES (American Myalgic Encephalomyelitis and Chronic Fatigue Syndrome Society) fundraiser just seems different. Many great opportunities to give exist in the ME/CFS universe .AMMES is the only one that’s dedicated, though, to helping people with ME/CFS who...
Neglect is embedded in our history. It’s hard to have a conversation without someone mentioning the neglected funding, the doctors who don’t get it, the lack of treatments, the unheeding friends or family; i.e. the things we as a community don’t have...
In the face of a chronic illness, our friends and family can resort to simple solutions: just try and be positive they might advise. Look on the bright side. Focus on what you can do. It’s not bad advice, but it often comes across as out of place and hurtful for...
This is the second in a series of articles celebrating visionaries in the ME/CFS/FM community who have taken the actions to make their visions real … Sometimes we overlook the obvious. We know studies indicate that chronic fatigue syndrome (ME/CFS) is probably...
Chronic fatigue syndrome is a terrible name. It’s such a terrible name that you have to give the people around you a little break. With that name, they’re almost doomed, at least at first, to think ME/CFS is a milquetoast kind of disease best suited to the...
