An Offering: ME/CFS Resources and Support for the COVID-19 Long Haulers
A couple of weeks ago Health Rising posted a kind of wakeup call for the COVID-19 long haulers. Borne out of decades of experience with ME/CFS, it was admittedly a pretty harsh piece – not easy to take in. An Open Letter to the COVID-19 Long Hauler Community...
Opportunity Knocks – For Action on the Bill to Double ME/CFS Funding
Health Rising readers have gotten quite a few blogs on the effort to get Congress to dramatically increase NIH funding for ME/CFS (HR 7057) – and here’s one more. As so often happens, something has unexpectedly come up – and time is short. Congress...
All-Hands-On-Deck Time To Double ME/CFS Funding at the NIH
Please note this is an action for U.S. residents. HR 7057: The Understanding COVID-19 Subset and ME/CFS Act HR 7057 is the ME/CFS community’s first ever attempt to fulfill a dream: a House Congressional bill that begins to address the decades of neglect from the...
The Solve ME/CFS Initiative Goes All In on First Ever Patient Registry for ME/CFS
The Fixer Often when I communicate with the Solve ME/CFS Initiative (SMCI), I end up with Allison. She seems to have her fingers in everything. She seemed to know the nuts and bolts of just about everything. I knew that Sadie Whittaker, the SMCI’s Chief...Lives Interrupted Latest Story
Don
Langham, Canada
Former occupation: Heavy duty journeyman Mechanic
CA $149,607
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