Long COVID, ME/CFS and the Trump Administration: Where We Stand Now
Geoff’s Narrations The Blog The GIST The GIST is on the bottom right “May you live in interesting times” Apocryphal Chinese curse We’re living in interesting times, that’s for sure. This blog attempts to gauge the state of ME/CFS,...
A Post-Infectious Disease “Moment”: Common Pathogens are as Bad as COVID-19 in Creating ME/CFS
Geoff’s Narration The Blog We’ve had chronic fatigue syndrome (ME/CFS) moments and long-COVID moments, and now we have our first post-infectious disease moment. “Moments” indicate that something significant has happened, suggesting that better...
Another “ME/CFS Moment”! ME/CFS is Much More Common than Thought, Says CDC
Whoa. Another ME/CFS moment. “ME/CFS moments” are events that appear to signal that things are changing for the better for this long-neglected disease (ME/CFS). The disease is being accepted more, and gaining traction in ways that it hadn’t before....
The CDC’s Big Fail on ME/CFS and Long COVID + The Alliance Strikes Back
There’s nothing like a crisis to expose fundamental weaknesses. As Warren Buffet likes to say, “It’s only when the tide goes out that you know who’s been swimming naked.” The coronavirus and long-COVID pandemic has exposed a lot of bare...
The Squeaky Wheel: the SMCI’s Professional Advocate Emily Taylor on Strategically Making Noise for Chronic Fatigue Syndrome
The ME/CFS community has been making valiant stabs at advocacy for quite a while. The stabbing, though, is over. That kind of ad hoc effort disappeared when the Solve ME/CFS Initiative (SMCI) hired the first full-time advocate for ME/CFS ever – Emily Taylor....StudyME
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