ME/CFS Funding Worsens As NIH Maintains Status Quo
A FOIA and Jennie Spotila’s analyses indicate the NIH funding for ME/CFS is heading in the wrong direction. Into the Dark Side Researchers abandoning the NIH? Significant drops in funding? Who could have imagined it would have gone this way four years ago when...
The “Dialogues for a Neglected Illness” Video Series Begins: Graded Exercise Therapy, the PACE trial and ME/CFS
A British film team travels to the Central Valley in California to ask the exercise physiologists at Workwell about the effectiveness of graded exercise therapy (GET) in ME/CFS. Then they turn to the notorious PACE trial. First Voices – then Dialogues –...
Oh Canada! Celebrating Canada’s Progress on ME/CFS
“With glowing hearts we see thee rise” From the Canadian National Anthem The tides are indeed rising for chronic fatigue syndrome (ME/CFS). Just three years ago, a grant application to create “an interactive and coherent Canadian network in...
Fibromyalgia and Chronic Fatigue Syndrome: The Gap Widens
With regards to research funding, infrastructure development, creativity and sheer energy - there's no doubt that the smaller ME/CFS community is far ahead of the much larger fibromyalgia community. The question is why and what can be done to unleash the FM community's vast resources.
Did a Pivotal Moment For ME/CFS Just Happen?
The National Institutes of Health (NIH), with its pitiful funding, has been a thorn in the ME/CFS community’s side for decades. For decades advocates have thrown everything they could – heartbreaking stories, demonstrations, insults – at the NIH in...StudyME
Enroll in the OMF’s StudyME project and help bring about a cure for ME/CFS, fibromyalgia, POTS and long COVID.
