Time for a Patient Revolution!
(An earlier version of this blog appeared on Phoenix Rising) ‘Let the Patient Revolution Begin’ A militant cry from those difficult ME/CFS patients unwilling to listen to doctors, researchers and government departments who only have patients’ best...Experts Expand Efforts to Stop IOM Contract: Wanda Jones to Step In – Chronic Fatigue Syndrome Definition Controversy Continues
The thirty-five is now fifty… Instead of being mollified by the DHHS working document, the effort by ME/CFS experts to rescind the IOM contract to produce a clinical case definition has actually gathered steam. The fifty ME/CFS experts signing the letter now...
A Film on the Most Devastating Disease Your Doctor Has Never Heard Of: The Canary in a Coal Mine Kickstarter Campaign Begins
The Kickstarter Campaign to produce the Canary in a Coal Mine film about chronic fatigue syndrome has begun.
(A)viva ME/CFS! Contest, Your Brain for Science, Making the Invisible Visible, the Definition Question – An Events Blog
There’s alot going on right now; check out the different events in this ‘Events blog’. Aviva ME/CFS! The National ME/FM Action Network’s May 12th Awareness Day for ME/FM submission in the Aviva contest is on the edge of winning $10,000 with the...A Tiger Awakes: ME/CFS Research Community Takes A Stand – Blasts Federal Efforts to Create Definition
Federal efforts to have an outside group create a definition for chronic fatigue syndrome hit a snag when many ME/CFS experts objected.StudyME
Enroll in the OMF’s StudyME project and help bring about a cure for ME/CFS, fibromyalgia, POTS and long COVID.
