This is wrong on so many levels – Mary Dimmock, advocate and mother of a severely ill son with ME/CFS Thanks to advocates Jennie Spotila, Mary Dimmock and others for jumping on this quickly. The Department of Health and Human Services is all of a sudden in the...
Twenty-one years ago today Tom Hennessey exhorted ‘CFS’ patients to unite together on the anniversary of Florence Nightingales birth to celebrate International CFS Day. Like all good ideas this one caught on and was copied with the result that May 12th...
Bernard Munos' daunting but ultimately inspiring talk on what the ME/CFS field needed to do to attract pharma suggested we may be closer than we think.
“There’s an unmet medical need right here and there has been for a long time” Bob Miller The first day of the FDA Stakeholders Meeting was like an patient/FDA roundtable session focusing on what symptoms are worst and what treatments worked best....
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