Art Mirin seemed hardly the person to lead a movement. A retired mathematician who’d been creating advanced climatological models at the famed Lawrence Livermore National Laboratory in California, Art had never done advocacy before. He had a sick daughter,...
Tom Hennessy and International Advocacy/Awareness Day Tom Hennessy created International ME/CFS/FM Advocacy day over 30 years ago. A fierce and creative fighter, Tom’s advocacy career was unfortunately curtailed by a tremendously difficult case of ME/CFS. To...
Has the Darth Vader of the ME/CFS Movement Changed His Tune? Anthony Fauci has led the National Institute of Allergy and Infectious Diseases (NIAID) at the National Institutes of Health (NIH) for 36 years. The man must be doing something right. Neither HIV/AIDS, SARS,...
The Hunt for More Funding For ME/CFS This is the fourth in a series of blogs on advocacy topics as we enter into the prime advocacy period of the year. Study Finds ME/CFS Most Neglected Disease Relative To Its Needs ME/CFS Experts Speak Out in #MEAction’s Long Covid...
This is the third in a series of blogs on advocacy topics as we enter into the prime advocacy period of the year. ME/CFS Experts Speak Out in #MEAction’s Long Covid Media Conference Time to Strike! Sign Up for a Monumental Virtual Lobby Day “America’s...
Virtual Lobby Day and Lobby Week is fast approaching, but this is not your average Lobby Day. In fact, we may not see its like again. The stars have finally been aligning for us. Long COVID is a hot subject – it just got over a billion dollars in funding....