The Stories We Tell: Unrest Inspired ME/CFS Effort Triumphs in the Unlikeliest of Places
When things start moving, help shows up in the most unlikely places. Take a recent blog from a University of Michigan sports blogger – Ace. Ace has been sick since high school but only in the last couple of years has he been diagnosed as having chronic fatigue...
Farewell – A Last Post from Anne Örtegren
I used to call Anne “my favorite Swedish advocate”. In fact she was simply one of my favorite advocates. Smart, tough, flexible, courageous – Anne managed to communicate with advocates, patients, doctors and researchers around the world from the...
The Opioid Painkiller Clampdown – Will it Lead to Better Drugs?
The FDA is clamping down harder and harder on opioid drugs, but it’s the Justice Department that’s probably sending the chills up some doctors’ spines. The Justice Department’s Opioid Fraud and Abuse Detection Unit, which operates in 12...
Bearing Witness for ME/CFS – Valerie Free Lights Up A Hidden World: Pt. I Valerie’s Story
ME/CFS needs witnesses – people who can stand firm in the face of denial and rejection and tell their story to the world. Each time we responsibly speak the truth to the medical profession, or our families, or our friends, or the NIH or whomever we begin to move...
An Easy Way to Tell if You Have Small-Fiber Neuropathy? The Fibromyalgia Symptom Study
Dr. Anne Oaklander didn’t just discover the small nerve fiber problems in fibromyalgia, she’s literally trying to build the small nerve fiber field from the bottom up. We can thank the NIH for that: it awarded her with a big ROI grant a couple of years ago...StudyME
Enroll in the OMF’s StudyME project and help bring about a cure for ME/CFS, fibromyalgia, POTS and long COVID.
