This is one of a series of blogs that will look at what’s coming up in 2018 from ME/CFS research foundations. Urgency Those ten NIH research center proposals contained a hidden gift. Of the ten grant applications, seven failed, leaving at least 21 potential...
Patient “X” was living high when he got ill. A course creator and director for an enterprise delivering transformational experiences, X thrived on his 100-hour work weeks. From the U.S. to lndia to Australia to Germany, he made his living making a difference with...
More Than Just a Film “riveting……equal parts medical mystery, science lesson, political advocacy primer and even a love story.” San Francisco Chronicle From the beginning Jen Brea’s vision has been a very large one of which Unrest was...
Difference-Maker Unlike FMS, SFPN has identifiable pathology, physiology, and causes, and thus is definitionally a disease. Oaklander et. Al. Dr. Anne Oaklander MD, PhD, is making a difference – maybe a very big difference in the lives of many. Making a...
Welcome to Lives Interrupted – a project by Health Rising designed to make clear on a personal level, the economic and other costs of having diseases like chronic fatigue syndrome (ME/CFS), fibromyalgia, postural orthostatic tachycardia syndrome (POTS), and long...
It’s great the NIH is doing telebriefings a couple of times a year to inform the chronic fatigue syndrome (ME/CFS) community of their progress. The calls can be more or less interesting. This one was definitely on the more interesting side. NIH Intramural Study...
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