Chronic Fatigue Syndrome (ME/CFS) Researcher and Patients Shine During NIH Call
It’s great the NIH is doing telebriefings a couple of times a year to inform the chronic fatigue syndrome (ME/CFS) community of their progress. The calls can be more or less interesting. This one was definitely on the more interesting side. NIH Intramural Study...
Health Rising’s BIG (Little) 2017 Fundraising Drive Is On!
My Story When I came down with ME/CFS/FM around 1980 there was literally nowhere to turn. By the time I became aware of these diseases in the late 1980’s and 1990’s, most of the information on them remained repetitive and shallow. Determined to build a site...
Tying the Brain and Body Together in Fibromyalgia?
Studies showing that the parts of the brain that process pain signals are lit up like Christmas trees in fibromyalgia, migraine, and other chronic pain disorders indicate that the brain plays a major role in these diseases. Other fibromyalgia studies, which indicate...
Through the Looking Glass: Cerebral Spinal Fluid Leaks & Ehlers Danlos Syndrome – an Alternate Reality to ME/CFS?
Caroline returns with a not uncommon story of a complicated chronic fatigue syndrome (ME/CFS) diagnosis. From fibromyalgia to Ehlers-Danlos syndromes to postural orthostatic tachycardia syndrome (POTS) to mast cell activation syndrome (MAST) to intracranial...
Losing a Beloved Career to a Chronic Illness: Amber’s ME/CFS Story
After 11 years of marinating in chronic illness, my ability to work has all but evaporated and I have entered the world of full time disability for the first time in my life. This time of year would normally mark a return to university life after the summer break....StudyME
Enroll in the OMF’s StudyME project and help bring about a cure for ME/CFS, fibromyalgia, POTS and long COVID.
