Avindra Nath reports the intensive NIH intramural ME/CFS study achieved its goal: finding consistent biological abnormalities that point to possible treatment options. You might be forgiven for thinking that #MEAction is “just” an advocacy organization....
Art Mirin seemed hardly the person to lead a movement. A retired mathematician who’d been creating advanced climatological models at the famed Lawrence Livermore National Laboratory in California, Art had never done advocacy before. He had a sick daughter,...
We’re moving into a prime advocacy period. This is the second of a series of blogs on advocacy that are going to appear over the next month. The first focused on the big advocacy event of the year – the Solve ME/CFS Initiative’s Lobby Day. If...
The ME/CFS community has been making valiant stabs at advocacy for quite a while. The stabbing, though, is over. That kind of ad hoc effort disappeared when the Solve ME/CFS Initiative (SMCI) hired the first full-time advocate for ME/CFS ever – Emily Taylor....
“Because it’s time we became the strength of our numbers” One thing that’s missing in ME/CFS advocacy are easy and effective ways to do it. We lack the tools other advocacy groups use to communicate, get the word out quickly and easily, and...
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