This is a response to Alice’s thoughtful blog, “No, long COVID is not helping ME/CFS – and we should stop pretending that it is…” No, Long Covid is Not Helping People with ME… Alice’s blog was carefully written. She wrote,...
Is the tide turning a bit? Could long COVID be starting to lift some chronic fatigue syndrome (ME/CFS) boats? That was certainly our hope. We hoped the appearance of millions of long-COVID long haulers would spark interest in the really long haulers – the people...
Dr. Bateman’s private practice was swamped. Her waiting list was a mile long – and she’d had it! With visions of all the patients she couldn’t help dancing in her head, Dr. Lucinda Bateman threw her hat over the wall, closed her practice, and...
We’re moving into a prime advocacy period. This is the second of a series of blogs on advocacy that are going to appear over the next month. The first focused on the big advocacy event of the year – the Solve ME/CFS Initiative’s Lobby Day. If...
We recommend that all ME/CFS and Fibromyalgia patients have a NASA 10-minute Lean Test to assess for orthostatic intolerance. Batetman Horne Center The saga of the effort to introduce and validate the NASA Lean Test (NLT) for ME/CFS just seems so right in so many...
Day two of the Conference – not all of which is covered here, started off with a physicians’ panel, then NIH Director Francis Collins showed up (covered later) just before the Intramural study presented some results, then it was onto Ian Lipkin, Dr. Oh,...
