Lives Interrupted: the Hidden Costs of Having a Neglected Illness
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Lives Interrupted seeks to illuminate the economic and other costs of having diseases like chronic fatigue syndrome (ME/CFS), fibromyalgia, postural orthostatic tachycardia syndrome (POTS), post-treatment Lyme disease, and long COVID. These diseases affect millions, typically receive little research funding, and, as a consequence have few good treatments available. Find out more about Lives Interrupted here.
All Stories
Name: Ani | Years Ill: 15 |
Location: Canberra, Australia | |
Former Occupation: I.T. apprentice | |
Former Activity Level (0-100): 100 | Current Activity Level (0-100): 30 |
Total Projected Economic Losses For Years Not Worked:
A$967,481 |
|
Story: I was in a car accident in 2008 at age 25. Prior to the accident I had a promising IT career an… |
Name: Azalea | Years Ill: 14 |
Location: Pullman, United States | |
Former Occupation: IT-Project Manager | |
Former Activity Level (0-100): 100 | Current Activity Level (0-100): 20 |
Total Projected Economic Losses For Years Not Worked:
$1,113,843 |
|
Story: In the fall of 2009 my former employer strongly encouraged all their employees to have a flu vacc… |
Name: Kitty | Years Ill: 2 |
Location: East Greenwich, United States | |
Former Occupation: Women’s Boutique/Therapist | |
Current Occupation: Business owner/therapist | |
Former Activity Level (0-100): 100 | Current Activity Level (0-100): 70 |
Total Projected Economic Losses For Years Not Worked:
$56,538 |
|
Story: So I went from taking kickboxing, and working to one day, noticing I could barely do a push-up. T… |
Name: Alison Wiltbank | Years Ill: 32 |
Location: Ocala, United States | |
Former Occupation: Part time RN | |
Former Activity Level (0-100): 100 | Current Activity Level (0-100): 30 |
Total Projected Economic Losses For Years Not Worked:
$382,347 |
|
Story: I have lived a long unhealthy life so I’m going to condense into Timelines for travel, disease … |
Name: Bryan | Years Ill: 22 |
Location: Huntsville, United States | |
Former Occupation: Family Physician | |
Former Activity Level (0-100): 100 | Current Activity Level (0-100): 50 |
Total Projected Economic Losses For Years Not Worked:
$3,660,079 |
|
Story: Prior to my illness, I was a very active, very successful member of my community. I was seeing 3… |
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Lives Interrupted
Lives Interrupted Latest Story
Lives Interrupted Stats
Years of Work Lost: 310
Average Total Economic Losses:
$804,860
Total Economic Losses:
$24,145,795
Lives Interrupted Sponsor
StudyME
Enroll in the OMF’s StudyME project and help bring about a cure for ME/CFS, fibromyalgia, POTS and long COVID.