Lives Interrupted: the Hidden Costs of Having a Neglected Illness
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Lives Interrupted seeks to illuminate the economic and other costs of having diseases like chronic fatigue syndrome (ME/CFS), fibromyalgia, postural orthostatic tachycardia syndrome (POTS), post-treatment Lyme disease, and long COVID. These diseases affect millions, typically receive little research funding, and, as a consequence have few good treatments available. Find out more about Lives Interrupted here.
All Stories
Name: Leslie Fellows | Years Ill: 9 |
Location: Santa Cruz, United States | |
Former Occupation: Winery owner/export director | |
Current Occupation: Very part-time desk work for our family winery | |
Former Activity Level (0-100): 100 | Current Activity Level (0-100): 60 |
Total Projected Economic Losses For Years Not Worked:
$161,978 |
|
Story: I started getting sick 10 years ago. Before that I was an active and energetic person attending a… |
Name: Mary | Years Ill: 2 |
Location: Abingdon, England, UK | |
Former Occupation: Professional Dog Trainer | |
Former Activity Level (0-100): 80 | Current Activity Level (0-100): 20 |
Total Projected Economic Losses For Years Not Worked:
£27,864 |
|
Story: At the age of 6 I got shingles, then throughout my childhood I had repeated bouts of Tonsillitis,… |
Name: Lavenderblue | Years Ill: 3 |
Location: Little Rock, United States | |
Former Occupation: Registered Nurse | |
Former Activity Level (0-100): 100 | Current Activity Level (0-100): 20 |
Total Projected Economic Losses For Years Not Worked:
$305,609 |
|
Story: At first I thought it was just taking a long time to recover. I took it easy for a bit. It never … |
Name: T-Rev | Years Ill: 8 |
Location: Bath, England, UK | |
Former Occupation: Christian Minister, Charities Director | |
Current Occupation: Christian Minister, Charity Director | |
Former Activity Level (0-100): 100 | Current Activity Level (0-100): 40 |
Total Projected Economic Losses For Years Not Worked:
£155,054 |
|
Story: I was living my best life, a high output, high energy, do-gooder. Able to travel and work in some… |
Name: MD | Years Ill: 6 |
Location: Vancouver, Canada | |
Former Occupation: Family Physician | |
Former Activity Level (0-100): 100 | Current Activity Level (0-100): 20 |
Total Projected Economic Losses For Years Not Worked:
CA $1,542,301 |
|
Story: Got a severe nasopharyngeal MRSA infection from work in 2017 which went misdiagnosed and untreate… |
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Lives Interrupted
Lives Interrupted Latest Story
Lives Interrupted Stats
Years of Work Lost: 310
Average Total Economic Losses:
$807,718
Total Economic Losses:
$24,231,532
Lives Interrupted Sponsor
StudyME
Enroll in the OMF’s StudyME project and help bring about a cure for ME/CFS, fibromyalgia, POTS and long COVID.