Lives Interrupted: the Hidden Costs of Having a Neglected Illness
Please wait while the map is loading...
Lives Interrupted seeks to illuminate the economic and other costs of having diseases like chronic fatigue syndrome (ME/CFS), fibromyalgia, postural orthostatic tachycardia syndrome (POTS), post-treatment Lyme disease, and long COVID. These diseases affect millions, typically receive little research funding, and, as a consequence have few good treatments available. Find out more about Lives Interrupted here.
All Stories
Name: Duckcove | Years Ill: 33 |
Location: North Kingstown, United States | |
Former Occupation: part time sailmaker, full time mom | |
Current Occupation: owner, part time custom marine canvas design | |
Former Activity Level (0-100): 100 | Current Activity Level (0-100): 30 |
Story: At 5'2" I was a happy dynamo of energy. From healthy to bedridden with many haywire body sy… |
Name: Patte Wood | Years Ill: 31 |
Location: Lexington, United States | |
Former Occupation: Administrative Director, Center for Computer Research in Music and Acoustics, Stanford University | |
Former Activity Level (0-100): 100 | Current Activity Level (0-100): 60 |
Total Projected Economic Losses For Years Not Worked:
$879,056 |
Name: Diane | Years Ill: 32 |
Location: Waltham, United States | |
Former Occupation: Software Project Manager/Internationalization Specialist | |
Former Activity Level (0-100): 100 | Current Activity Level (0-100): 20 |
Total Projected Economic Losses For Years Not Worked:
$3,009,929 |
Name: Drdragonmama | Years Ill: 13 |
Location: Almena, United States | |
Former Occupation: Psychologist/Executive | |
Current Occupation: psychologist/author | |
Former Activity Level (0-100): 90 | Current Activity Level (0-100): 50 |
Total Projected Economic Losses For Years Not Worked:
$650,549 |
Name: Steph | Years Ill: |
Location: Indianapolis, United States | |
Former Occupation: Respiratory Therapist | |
Current Occupation: Respiratory Therapist | |
Former Activity Level (0-100): 100 | Current Activity Level (0-100): 50 |
Story: I had my daughter in 2010. My life changed immensely. I had this beautiful human to be responsibl… |
Name: Henchman D | Years Ill: 3 |
Location: Luton, England, UK | |
Former Occupation: National Operations Manager | |
Former Activity Level (0-100): 100 | Current Activity Level (0-100): 20 |
Total Projected Economic Losses For Years Not Worked:
£162,479 |
Name: Ann | Years Ill: 6 |
Location: St. Louis, United States | |
Former Occupation: Chemo and Infusion Nurse | |
Former Activity Level (0-100): 100 | Current Activity Level (0-100): 40 |
Total Projected Economic Losses For Years Not Worked:
$216,464 |
|
Story: I became sick with ME 4 months prior to a 5-day backcountry hike of the Chilkoot Trail in Alaska.… |
Name: Anna Marie | Years Ill: 21 |
Location: Huddersfield, England, UK | |
Former Occupation: Architectural technician | |
Current Occupation: Ventilation design engineer | |
Former Activity Level (0-100): 100 | Current Activity Level (0-100): 70 |
Total Projected Economic Losses For Years Not Worked:
£340,896 |
|
Story: About 25 years ago (in my mid 20s), I started getting unexplained fatigue and then age 30 I got "… |
Subscribe
Subscribe To Health Rising’s Free Chronic Fatigue Syndrome, Fibromyalgia and Long COVID Information
Support Health Rising
BECOME A RECURRING DONOR
GIVE A ONE-TIME DONATION
HEALTH RISING IS NOT A 501 (c) 3 NON-PROFIT
Lives Interrupted
Lives Interrupted Latest Story
Allyn Archer
Atlanta, United States
Former occupation: Architect, Professor of Architecture
Total Economic Losses:
$2,768,291
Lives Interrupted Stats
Years of Work Lost: 326
Average Total Economic Losses:
$869,996
Total Economic Losses:
$26,969,889
Lives Interrupted Sponsor
StudyME
Enroll in the OMF’s StudyME project and help bring about a cure for ME/CFS, fibromyalgia, POTS and long COVID.