A Young Doctor Fights to Cure His Own Rare, Deadly Disease His Doctors Were Stumped. Then He Took Over. The “Beast” was just twenty-five years old. A physical specimen, David Fajgenbaum went from gym rat to invalid incredibly quickly. First his lymph nodes...
Talk about the art of communication. There’s a reason Jen Brea’s TED talk on ME/CFS has received over 220,000 views in just four days; it’s just really, really good. Check out a talk that’s spreading the word on ME/CFS with lightning speed and...
In November 2015 NIH Director Francis Coillins said that NIH was going to “ramp up” funding for ME/CFS and that it would be “substantially greater” than the current five or six million dollars a year the disease was getting. “Just watch...
Chronic fatigue syndrome (ME/CFS) and fibromyalgia (FM) have a long, long way to go before they get the attention and resources they deserve. It would take a heroic leap to quickly achieve what people with these diseases deserve and what the diseases themselves...
The NIH laid a huge egg when someone invited Edward Shorter, a Toronto psychiatrist who makes Simon Wessely look like an angel, to speak on ME/CFS. Shorter not only denies the disease exists but calls ME/CFS patients “groaning victims” and belittles their...
The NIH should be releasing it’s increased funding for chronic fatigue syndrome (ME/CFS) soon. As we wait for that let’s take a look at several things that have happened in the last month and assess where we are, and what we have learned. The first thing...
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