This has a been good week for advocacy. It’s showing that smart advocacy works. Twice advocates went straight back into “the system” looking for results and twice – once with the PACE trial and here with AHRQ report in the U.S. – they...
Recovery Recoveries or near recoveries from chronic fatigue syndrome (ME/CFS) and/or fibromyalgia don’t happen often but they do occur. For some recovery stories bring hope and new ideas, but for others they bring up feelings of sadness or frustration. They...
Mending Us Mendus is the brainchild of Joshua Grant, a neuroscientist with chronic fatigue syndrome (ME/CFS). Joshua looked around and saw a mountain of possible treatments with nothing other anecdotal evidence to recommend them. Given that he couldn’t expect...
People who have chronic Lyme disease are a mystery in the same way that people with ME/CFS who come down with an infection and never recover are. A recent study that asked why chronic Lyme patients don’t recover could have implications for ME/CFS. It also asked...
Committing to building an ME/CFS/FM Center in a small metropolitan area was a audacious move, but the money POURED in, and it paid off. The new Bateman Horne ME/CFS/FM Center will open its doors on August 15th. Find out why this is such good news not just for Utah...
Fear and anxiety. I don’t know about you, but since I came down with chronic fatigue syndrome (ME/’CFS) / fibromyalgia (FM) it seems like those two states of mind are ever present. Fear that I’m suddenly going to get worse, or will have money...
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