Several #MECFS advocates and I received an email this afternoon from Dr. Walter Koroshetz, NINDS Director, providing written clarification of enrollment criteria for the NIH Clinical Center Study: Dear colleagues, Thank you for communicating your concerns. Having...
Our goal is to provide people touched by or otherwise interested in chronic pain with knowledge of the latest findings and ideas from this blossoming area of science, so they can spark and contribute to a worldwide conversation about chronic pain and help rally...
A rough sketch of the NIH’s Clinical Center study for chronic fatigue syndrome (ME/CFS) has been posted. The good news about the study is that when Francis Collins said they were serious about ME/CFS he apparently wasn’t kidding. This looks to be the most...
We’re going to take a deeper look at the oh so interesting field of small fiber neuropathy fibromyalgia (FM). A debate is raging over how big of a role SFN plays in FM. The central sensitization guys are saying probably “not much” while the immune...
In 2011 the CFIDS Association (now the Solve ME/CFS Initiative) engaged a “drug repositioning” company called Biovista to search through thousands of drugs to find a new approach to ME/CFS. Biovista’s algorithm identified “every known gene,...
One way to accomplish something is imagine a future in which it has already occurred and then work backwards and show how it happened. Doing that illuminates what needs to happen now in order to produce that result. This is a thought experiment that explains how...
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