Fifteen years ago I was diagnosed with Fibromyalgia and ME (aka Chronic Fatigue Syndrome), a debilitating condition that includes continual pain and delayed fatigue as its primary symptoms. I often find myself trying to explain to other people what the delayed fatigue...
This is the third in a series of blogs following the work of Workwell and allied exercise physiologists who are aiming to do nothing less than revolutionize the way chronic fatigue syndrome / myalgic encephalomyelitis (ME/CFS) is viewed. The Disability Defenders:...
Leonard Jason, ME/CFS’s foremost epidemiologist and researcher/advocate requests that you tell him what the heck happens when you engage in physical and cognitive exertion. The survey grew out of extensive discussions with the patient community during the public...
Caroline returns with a not uncommon story of a complicated chronic fatigue syndrome (ME/CFS) diagnosis. From fibromyalgia to Ehlers-Danlos syndromes to postural orthostatic tachycardia syndrome (POTS) to mast cell activation syndrome (MAST) to intracranial...
Experiencing a “crash” or “flare” from too much activity (or whatever) in ME/CFS and fibromyalgia is a given. Most people react by reducing their activities, canceling plans, removing stimuli and going into rest mode. Most of our attention has...
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