Over 1300 registrations, 650 threads and almost 3,000 posts later Health Rising’s Forums have come a long way in 2 1/2 months.
If you’re just registered for the blog you may be missing out on some good material. If you’re registered and haven’t been by lately – do come by again. A lot has happened on the Health Rising Forums in the last couple of months. Here’s some of it.
Blogs
We’re frequently running shorter blog – length articles on the Forums. Recent ones include
Major drug trial in fibromyalgia targets sleep problems- Autonomic nervous system problems linked to pain in fibromyalgia
- Biological Link Between Pain and Anxiety Opens New Drug Possibilities
- How Have People Recovered From ME/CFS? Check out Five Ways
- Wandering Minds: Chemo fog in Cancer Similar to Brain Fog in ME/CFS
- Lyme Disease Goes Mainstream: Johns Hopkins Opens Lyme Research and Treatment Unit
- A Seminal Figure in ME/CFS on Her Research Program: Dr. Newton Talks
And of course there are shorter posts
- Big Fibromyalgia Effort Underway to Identify New Pain Pathways
- Autoimmune patients going into remission with Vit D protocol from brazilian Dr.
- Study Suggests FM Patients Heads Not on Straight…:)
- The Pain in Fibromyalgia and Rheumatoid Arthritis: It’s Different!
- Oh No! High Fat Diet Impacts Brain Health
- Hydroxytyrosol -The Most Powerful Antioxidant (???)
Polls
Health Rising has the most interesting polls on the internet.
- Would You Take an Experimental Drug For ME/CFS and/or FM?
- How Functional are you? Take the ME/CFS/FM Functionality Poll
- What’s Your History? Take the Gynecological History Poll
- What You NOT Been Tested For?
- The Season’s Poll: Do You Notice Changes in Your Health Over the Seasons?
Recovery Stories
We’re slowly getting our list of recovery stories onto the Forums. Check out
- A Package Deal Works for Claire
- Diet, Supplements and Pacing Work for Professional Footballer
- Adrienne Delwho’s Pathway to Remission
- Jeri’s Amazing Discovery
- Eight Years of ME/CFS Disappears in Two Hours
Resources
Check out our growing resource section
- How to Order Tests Online (without a doctor’s prescription)
- What to do after getting a tick bite?
- How to tell if you suffer from migraine headaches?
- Powerful “Pain Matters’ video documentary debuts
- Ways to Reduce Chronic Pain Without Drugs
- Large Databases for finding ME/CFS and FM doctors
- Major Report on CBT/GET Highlights Issues – Recommends Changes
Media
The Health Rising Forums may already have the largest ME/CFS and FM video section on the internet
- 6 major overview of ME/CFS,
- 9 treatment video’s,
- 5 recovery stories,
- 5 fibromyalgia overviews,
- 7 MTHFR reviews,
- 8 small fiber neuropathy video’s
and many more
Check out the Forums (and register for them) Here
Can I suggest a poll/survey or collection of data of everyone who has had a recovery from whatever treatment and how long they had/have been ill for, if they seemed to have a remitting form of ME/CFS or Fibro (did your illness in all the years you were sick ever fluctuate in functioning ability/get better or did you continually get worse with perhaps some stable periods) and what state they were in when they got better. And also what they tried that worked. And if it has come back or how long it’s been in remission/away?
Because for me, I’m wondering if, like MS, there’s two or more forms: a declining form versus a remitting form. And what percentage of the people getting these recoveries have had what patterns of illness.
For me I’ve always had a rapid decline, followed by a steady decline, followed by a stable period…rinse and repeat. Never in 14 years have I gotten a smidgen better or less pain and yet I’ve tried the exact things the recovery people have:
Yoga
Acupuncture
Multiple diets though mostly around the same core ideals
Medications
Therapies
Etc
I don’t know if this is even possible to gather that kind of data on that kind of scale but I think someone should perhaps ask these questions or gather this data and give it to one of our amazing scientists and doctors on our side and see if it helps?
Cort- Kudos to you for your great dedication to helping others. Your efforts at informing people are inspiring.You are deserving of praise- even from this critic- and you have my admiration and support. Thanks for setting an example.