Writing about someone with chronic fatigue syndrome (ME/CFS) who dies is always tragic – tragic because of what might have been; tragic to see a once productive, healthy human brought down so low; tragic because of awful circumstances that inevitably occur. In...
Insomnia can be a terrible thing. Combine it with night sweats and you’ve in real trouble. Darden, who had both, was sleeping so little at night that she was near suicidal – until she came upon a simple, cheap practice that she says saved her life. Find...
Poor sleep is synonymous with both ME/CFS and fibromyalgia. We know it produces fatigue, pain, irritation and mood issues but recent studies suggest that may just be the beginning of the problem. In fact, they suggest that poor sleep may have profound effects on our...
The Intramural NIH study and the NIH Research Centers are a kind of dodge. Yes, they’re tasked with, and will provide, new insights into ME/CFS, but their real purpose is to do one thing: to get individual researchers to write more research grant proposals....
It’s June 2017 – the Advisory Committee to the Director of the NIH is in the middle of their 114th meeting to the NIH Director. Their task is: “To make recommendations concerning program development, resource allocation, NIH administrative regulation...
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