Erica Verillo’s AMMES Crowdrise project fills such a vital need that one wonders why it hasn’t been done before. After forming a new organization (AMMES) and website, Erica’s first action was to produce a fundraiser to support the most vulnerable...
It’s not every day that a noted researcher calls a study “the capstone” of his career or asserts that it’s more important than the rest of his 500 studies put together. That’s pretty amazing but the exciting part for those of us with...
If you think ME/CFS and FM are behind the eight ball at the NIH, then check out postural orthostatic tachycardia syndrome (POTS), a common comorbidity. The NIH doesn’t even measure POTS funding but then how could it? POTS doesn’t even have a designated...
A Little History Given our vaunted insularity, many in the U.S. may not know of the role Canada and Canadian figures have played in ME/CFS. The Canadian influence has been strong and it’s growing. So far as I can tell and I’m no expert the Canadian...
“It will be transformative.” Francis Collins Neither chronic fatigue syndrome (ME/CFS) or fibromyalgia (FM) exactly feel welcome at the NIH. Funding for both diseases is pitiful, but a program has just opened up which welcomes everyone’s participation. A top...
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