Straight Talk From Carol Head As She Steps Down From Solve ME
ME/CFS Rears Its Head Again A commitment to social justice runs in Carol Head’s blood. She founded a non-profit which has given away millions to support entrepreneurs who work on global poverty, and was a founding board member of another non-profit that tells the...
How to Build the ME/CFS Field: The NIH Wants Your Input
The NANDS Council Working Group for ME/CFS Research is a NINDS (National Institute of Neurological Disorders and Stroke) effort designed to get NINDS off its butt (so to speak) and accelerate the research done on ME/CFS. It will ask NANDS – the group which...
The Squeaky Wheel: the SMCI’s Professional Advocate Emily Taylor on Strategically Making Noise for Chronic Fatigue Syndrome
The ME/CFS community has been making valiant stabs at advocacy for quite a while. The stabbing, though, is over. That kind of ad hoc effort disappeared when the Solve ME/CFS Initiative (SMCI) hired the first full-time advocate for ME/CFS ever – Emily Taylor....
Dr Nath Talks on the ME/CFS NIH Intramural Study
Clutching our little maps we gloomily stared at the rain pelting the grey labyrinth that was the NIH. We were utterly lost and very late for our appointment with Dr. Nath, the leader of the NIH Intramural study on ME/CFS. Thankfully, we eventually found our way and...
The Lie in the NIH’s “Accelerating Research on ME/CFS” Slogan
“We’re saying that ME/CFS is a program priority now…..Give us a chance to prove we’re serious – because we are.” Francis Collins “We recognize and empathize with the suffering experienced by people with ME/CFS and their frustration that so little is known...Lives Interrupted Latest Story
Megan
Randolph, United States
Former occupation: Day care worker
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