As we appear to be finally turning a corner at the federal level, Prohealth’s Advocate of the Year Award gave me the opportunity to sit down and reflect on the long arc of ME/CFS advocacy. That made me realize how dependent the successes of the present have been...
The NIH held a telebriefing with about 100 ME/CFS advocates, researchers and supporters Tuesday morning. This overview is taken from my notes of the meeting. The Big Three – Dr. Francis Collins, Dr. Koroshetz and Dr. Nath – were all there – and that...
Thanks to Simon and MEAction for allowing Health Rising to post Simon’s exposition of the truly remarkable chronic fatigue syndrome (ME/CFS) study about to take place at the NIH. This blog first appeared on MEAction. Most images and captions were added by me...
Another week – another controversy for ME/CFS and the NIH. ME Action’s recent post stating that the lead clinical investigator in the NIH’s big intramural study believes ME/CFS and FM are psychosomatic disorders has understandably raised a storm of...
Dr. Avindra Nath laid out a three pronged strategy to develop treatments for ME/CFS at the CDC’s Grand Rounds meeting today. The first step is the Clinical Center Study soon to begin. The second step will validate the biomarkers found in the first study. The...
A rough sketch of the NIH’s Clinical Center study for chronic fatigue syndrome (ME/CFS) has been posted. The good news about the study is that when Francis Collins said they were serious about ME/CFS he apparently wasn’t kidding. This looks to be the most...
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