The Long Arc of Chronic Fatigue Syndrome (ME/CFS) Advocacy
As we appear to be finally turning a corner at the federal level, Prohealth’s Advocate of the Year Award gave me the opportunity to sit down and reflect on the long arc of ME/CFS advocacy. That made me realize how dependent the successes of the present have been...
NIH Pledges Long Term Effort on Chronic Fatigue Syndrome (ME/CFS): Promises to “Stay the Course”
The NIH held a telebriefing with about 100 ME/CFS advocates, researchers and supporters Tuesday morning. This overview is taken from my notes of the meeting. The Big Three – Dr. Francis Collins, Dr. Koroshetz and Dr. Nath – were all there – and that...
Extraordinary NIH ME/CFS Clinical Center Study May be Most Comprehensive and In-Depth Ever
Thanks to Simon and MEAction for allowing Health Rising to post Simon’s exposition of the truly remarkable chronic fatigue syndrome (ME/CFS) study about to take place at the NIH. This blog first appeared on MEAction. Most images and captions were added by me...
The Psychosomatic Researcher in the NIH’s Big Chronic Fatigue Syndrome (ME/CFS) Study
Another week – another controversy for ME/CFS and the NIH. ME Action’s recent post stating that the lead clinical investigator in the NIH’s big intramural study believes ME/CFS and FM are psychosomatic disorders has understandably raised a storm of...
Three Pronged NIH ME/CFS Study Sets Treatments as Ultimate Goal
Dr. Avindra Nath laid out a three pronged strategy to develop treatments for ME/CFS at the CDC’s Grand Rounds meeting today. The first step is the Clinical Center Study soon to begin. The second step will validate the biomarkers found in the first study. The...Lives Interrupted Latest Story
Megan
Randolph, United States
Former occupation: Day care worker
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