“Left Out”: An ME/CFS Movie of Commitment, Hope and Despair
It was a project birthed in hope. Pal Schaathun, a Norwegian filmmaker would document what he hoped might be the end of chronic fatigue syndrome (ME/CFS). That, unfortunately, turned out not to be but Schaathun ended up documenting – in strikingly beautiful...
Building It! An ME/CFS/FM Community: An Exploratory Survey
My partner and I both have ME/CFS/FM and we both have special housing needs. She has mold issues and some chemical sensitivities and I have chemical sensitivities. Both these issues can pose considerable problems when renting or buying. Three years ago, my partner...
“Crushing It”: Large Pridgen Fibromyalgia Antiviral Trial Expected This Summer
I was a bit anxious as I waited for Dr. Pridgen to pick up. It had been a year and a half since we talked and I had heard nothing. Given Pridgen’s approach – using antivirals in a disease (fibromyalgia) that few connected with pathogens – his...
Hacking ME/CFS and Fibromyalgia the OKR Way
Last March, I trudged out to the van to install a solar panel. I’d been fighting a cold but this was something thing I dearly wanted to get done. In general, I felt a little activity had been helpful with colds. This time, it was different. The work took longer...
ME/CFS Patients Pushing Their Limits – and the NIH – for ME/CFS
The Washington Post is running an excellent story, “Patients push limits for clues to chronic fatigue syndrome”, on ME/CFS and the NIH’s ME/CFS intramural study. The featured story – of Zach Ault, a father, who while training for a...Lives Interrupted Latest Story
Daily survivor
Indianapolis, United States
Former occupation: Finance and Banking
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