Epic Attempt: Will EpicGenetics Transform Fibromyalgia Diagnostics and Treatment? (And Why People with ME/CFS Should Care)
EpicGenetics is attempting to produce a diagnostic blood test, a genomic test and provide a treatment option for fibromyalgia
Does Intracranial Hypertension Run Rampant in Fibromyalgia, ME/CFS and Migraine?
Studies suggest that a different form of intracranial hypertension may be common in chronic fatigue syndrome (ME/CFS), fibromyalgia and migraine. After digging around several times, the doctor was able to access my spinal fluid and get a sample and I was able to stop...
Under Pressure: Large Spinal Study Finds Intracranial Hypertension Common in ME/CFS
A large spine study found high rates of joint hypermobility, Ehlers Danlos Syndrome, intracranial hypertension and possibly spinal issues in chronic fatigue syndrome
ME/CFS Funding Worsens As NIH Maintains Status Quo
A FOIA and Jennie Spotila’s analyses indicate the NIH funding for ME/CFS is heading in the wrong direction. Into the Dark Side Researchers abandoning the NIH? Significant drops in funding? Who could have imagined it would have gone this way four years ago when...
“Something Completely Different”: Ian Lipkin Talks at the CDC on ME/CFS
The talk was titled, “Now for Something Completely Different: A microbe hunter turns to ME/CFS”. Except that Ian Lipkin is not just any microbe hunter: for many people, he’s THE microbe hunter. Internationally known for his breakthrough work on...Lives Interrupted Latest Story
Daily survivor
Indianapolis, United States
Former occupation: Finance and Banking
$820,053
StudyME
Enroll in the OMF’s StudyME project and help bring about a cure for ME/CFS, fibromyalgia, POTS and long COVID.
