Accelerating ME/CFS? The NIH Conference Day I: Exhausted Systems, Inflammation and Weirdness
A Critical Look at the NIH’s Accelerating Research Conference This chronic fatigue syndrome (ME/CFS) conference was different. Besides the normal goal of bringing researchers together to share their latest results, it had an ulterior motive – getting NIH...
The Squeaky Wheel: the SMCI’s Professional Advocate Emily Taylor on Strategically Making Noise for Chronic Fatigue Syndrome
The ME/CFS community has been making valiant stabs at advocacy for quite a while. The stabbing, though, is over. That kind of ad hoc effort disappeared when the Solve ME/CFS Initiative (SMCI) hired the first full-time advocate for ME/CFS ever – Emily Taylor....
Medscape’s Chronic Fatigue Syndrome (ME/CFS) Program Reaches Deep into the Medical Community
With its regular news updates, information on drugs and diseases, quizzes, conference overviews, and educational courses, Medscape, which just turned 20 years old, strives to be a kind of one-stop shop for medical professionals (and consumers). It appears to be...
Plunging Grant Application Rates Test NIH’s Commitment to Chronic Fatigue Syndrome (ME/CFS)
“We’re saying that ME/CFS is a program priority now…Give us a chance to prove we’re serious – because we are.” Francis Collins No one could have expected this. The NIH was supposed to reinvigorate ME/CFS research, not watch a vital aspect of it go down the...
Neuroinflammation and Chronic Fatigue Syndrome: The VanElzakker Way
In 2013, Michael VanElzakker produced one of the most intriguing hypotheses to date in ME/CFS. His Vagus Nerve Hypothesis proposed that an infection/inflammation near the vagus nerve was causing it to send an unending stream of messages to the brain, telling it to...Lives Interrupted Latest Story
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