Supporting the Severely Ill – The AMMES Crowdrise Project
Erica Verillo’s AMMES Crowdrise project fills such a vital need that one wonders why it hasn’t been done before. After forming a new organization (AMMES) and website, Erica’s first action was to produce a fundraiser to support the most vulnerable...
POTS Rising! Research & Advocacy Producing Breakthroughs in Neglected Disease
If you think ME/CFS and FM are behind the eight ball at the NIH, then check out postural orthostatic tachycardia syndrome (POTS), a common comorbidity. The NIH doesn’t even measure POTS funding but then how could it? POTS doesn’t even have a designated...
Three Days in May: First International Canadian ME/CFS Conference Hits the Mark
A Little History Given our vaunted insularity, many in the U.S. may not know of the role Canada and Canadian figures have played in ME/CFS. The Canadian influence has been strong and it’s growing. So far as I can tell and I’m no expert the Canadian...
Huge “All of Us” NIH Initiative Offers Possibilities for ME/CFS and Fibromyalgia
“It will be transformative.” Francis Collins Neither chronic fatigue syndrome (ME/CFS) or fibromyalgia (FM) exactly feel welcome at the NIH. Funding for both diseases is pitiful, but a program has just opened up which welcomes everyone’s participation. A top...
Pain, Genes, Drugs and You: How Your Genetic Makeup May Be Keeping You in Pain
From Dr. Trescott’s lecture given to the Physician Partners of America: “Your Genes, Your Pain Drugs and You Or “Why Every Pain Physician Should be Testing Your Genes” When the patient says, “This doesn’t work,” or, “I’ve been too sensitive,”...Lives Interrupted Latest Story
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Indianapolis, United States
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