Pain, Fatigue, Sleep and Gut Problems But Not Fibromyalgia Or ME/CFS? The Misdiagnosis Chronicles
She was twenty years old – a competitive skier – complaining of muscle and joint pains, fatigue, gut problems, difficulty sleeping, cognitive problems, difficulty concentrating and tingling sensations. When she tried to exercise the pain in her shoulders...NINDS Director email: NIH study enrollment requires PEM and CCC
Several #MECFS advocates and I received an email this afternoon from Dr. Walter Koroshetz, NINDS Director, providing written clarification of enrollment criteria for the NIH Clinical Center Study: Dear colleagues, Thank you for communicating your concerns. Having...
Relief! A New Pain Resource Opens
Our goal is to provide people touched by or otherwise interested in chronic pain with knowledge of the latest findings and ideas from this blossoming area of science, so they can spark and contribute to a worldwide conversation about chronic pain and help rally...
The NIH Clinical Center Study for Chronic Fatigue Syndrome (ME/CFS): the Good, the Bad and the Just Plain Weird
A rough sketch of the NIH’s Clinical Center study for chronic fatigue syndrome (ME/CFS) has been posted. The good news about the study is that when Francis Collins said they were serious about ME/CFS he apparently wasn’t kidding. This looks to be the most...
Diagnosing Fibromyalgia The Small Nerve Fiber Way
We’re going to take a deeper look at the oh so interesting field of small fiber neuropathy fibromyalgia (FM). A debate is raging over how big of a role SFN plays in FM. The central sensitization guys are saying probably “not much” while the immune...StudyME
Enroll in the OMF’s StudyME project and help bring about a cure for ME/CFS, fibromyalgia, POTS and long COVID.
