It’s Whitney Dafoe’s 37th birthday. He’s had chronic fatigue syndrome (ME/CFS) since 2004 and has been severely ill since about 2012. Fed by feeding tubes, eyes and ears covered, too weak to move, unable to speak or tolerate almost any...
The first of two of three blogs exploring the renin-angiotensin-aldosterone system in ME/CFS and COVID-19. Warning – this blog is complex… Back in 1997, they had a couple of important things right – orthostatic intolerance (OI) is basically caused by...
Ron Davis’s Stanford ME/CFS Collaborative Research Center is itching to get back to full-time lab work. It’s not that Davis and his group haven’t been working. Janet Dafoe described constant Zoom calls with ME/CFS researchers, a bevy of grant...
Jeff Wood’s remarkable recovery from severe ME/CFS following spinal surgery to correct craniocervical instability (CCI) and other problems shocked the ME/CFS community. It’s safe to say that almost no one saw that coming. Since then, others, including Jen Brea...
H.R. 7057 – The Understanding COVID-19 Subsets and ME/CFS Act is back. There’s a reason this is taking so long. It’s the same reason that it’s taken 4 years of work to get to this point. This is not just an attempt to get more money for ME/CFS:...
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