(Darden has looked high and low to find ways to understand and treat her ME/CFS/FM, and, if she’s not healthy now, she’s still been able to improve her health substantially. Recently a diagnosis of a Ehler’s Danlos Syndrome – a lesser known...
With a UK trial for Rituximab at least temporarily in doubt, let’s turn the focus to Ampligen – a drug that is potentially one trial away from being approved for ME/CFS. Ampligen is still the only drug that’s been able to move the needle on exercise...
NIH is asking the ME/CFS community what future research should be done. We are submitting a request to have NIH fund clinical trials for ME/CFS starting with Ampligen, as the only medication close to approval in the FDA pipeline. If you want to add your name to this...
It’s pretty clear that the fight/flight system is going gangbusters in ME/CFS/FM. Getting that puppy calmed down could result in less pain, better sleep, clearer thinking and less fatigue . So it might help if you could tell if something was turning your fight...
She’s had chronic fatigue syndrome (ME/CFS) for twenty-eight years and has left no stone unturned in her attempts to get well. She’s traveled widely and seen some of the best ME/CFS doctors in the world. Despite being connected to the hilt in the ME/CFS,...
Almost 80% of ME/CFS and FM patients reported that insomnia was a major or moderate problem in Health Rising’s Sleep Survey. They also often report feeling “wired and tired”. Could the two be connected? And if they are, is there anything to be done...
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