Paul Garner’s recovery story from long COVID has met with almost universal dismay and anger from the chronic fatigue syndrome (ME/CFS) community. Garner, after all, was something of a champion for long COVID and ME/CFS. An infectious diseases specialist who had...
In 2015, Dean Echenberg, MD, PhD, a former public health official and Director of Disease Control in San Francisco at the height of the HIV/AIDS epidemic, had a question. His own course of ME/CFS had been anything but smooth. Echenberg had experienced years of illness...
A Story With Hope “Just over a year ago, I could not leave my house without a wheelchair. I spent most of my day on a couch or a bed, lying or sitting down. I avoided light, sounds, gatherings.” Christine I attended the Accelerating Research on ME/CFS...
The first five parts of Kyle McNease’s ME/CFS story (The Suffering of One is the Suffering of All) related his journey from an athletic Oxford student to a biological basket case. When we left him, Kyle was near the end of his rope: emaciated, wracked by...
Who better to write this piece “This college dropout was bedridden for 11 years. Then he invented a surgery and cured himself” than Ryan Prior – who himself recovered from a debilitating mysterious disease. Doug Lindsay’s story is so powerful...
Talk about survivor’s remorse. To this day, I still can’t come to terms with a world in which Jarret and Dan are cut down in their prime, while I continue on. That will never make sense to me. Not now. Not ever. It’s not worth concealing either. I feel guilt that I’m...