With regards to research funding, infrastructure development, creativity and sheer energy - there's no doubt that the smaller ME/CFS community is far ahead of the much larger fibromyalgia community. The question is why and what can be done to unleash the FM community's vast resources.
The NANDS Council Working Group for ME/CFS Research is a NINDS (National Institute of Neurological Disorders and Stroke) effort designed to get NINDS off its butt (so to speak) and accelerate the research done on ME/CFS. It will ask NANDS – the group which...
I never would have guessed this was the solution to my ME/CFS. Jeff, on Phoenix Rising Jeff had a typical ME/CFS onset: he was a young, healthy and active individual before being felled by a viral infection and a high temperature. The infection left him with...
ME/CFS advocacy is growing and growing. We have two groups, ME Action (join it here) and the Solve ME/CFS Initiative working pretty much in lockstep to move forward on ME/CFS. Central to both groups’ efforts are a Senate Resolution sponsored by Senator Markey...
More Than Just a Film “riveting……equal parts medical mystery, science lesson, political advocacy primer and even a love story.” San Francisco Chronicle From the beginning Jen Brea’s vision has been a very large one of which Unrest was...
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