We’re moving into a prime advocacy period. This is the second of a series of blogs on advocacy that are going to appear over the next month. The first focused on the big advocacy event of the year – the Solve ME/CFS Initiative’s Lobby Day. If...
“The story is always the same. When a pandemic happens, people always focus on the primary organ, but they forget about the brain.” Avindra Nath, MD Most researchers, when they focus on post-infectious illnesses, go straight to the body to figure...
The fact that ME/CFS is a mystery doesn’t daunt the leader of the NIH’s big intramural study on ME/CFS at all. Just a couple of years ago Avindra Nath and his compatriots cracked a mysterious neurodegenerative disease in East Africa that researchers had...
The NIH’s Intramural study constitutes the biggest “fishing expedition” ever done in this disease. From stays in metabolic chambers, to ME/CFS patients immune systems being transplanted into mice, to their “brains” (neurons) being grown...
The NIH held a telebriefing with about 100 ME/CFS advocates, researchers and supporters Tuesday morning. This overview is taken from my notes of the meeting. The Big Three – Dr. Francis Collins, Dr. Koroshetz and Dr. Nath – were all there – and that...
