A Wing, A Prayer and Vicky Whittemore: The NIH and Chronic Fatigue Syndrome in 2018
“I think some people are angry for good reason. This disease hasn’t gotten enough attention.” Vicky Whittemore My partner and I made our way to Vicky Whittemore’s office in a building off the NIH campus. Security was tight as always. We signed in...
Mission Accomplished! (????) Feds Terminate the Federal Advisory Committee on Chronic Fatigue Syndrome (ME/CFS)
An important voice has been silenced Dr. Lucinda Bateman Without any warning the NIH, in a letter sent to current Chronic Fatigue Syndrome Advisory Committee (CFSAC) members, told them their services were no longer needed. The 15-year experiment that was CFSAC –...
HEAL II: The NIH’s Big Opioid and Pain Initiative Gets More Teeth
The HEAL Initiative (Helping End Addiction Long Term) is one of the rare NIH initiatives that presents real possibilities for a long neglected population. It took an act of Congress – which gave the NIH $500 million and specifically directed them to use it attack...
“Now is the Time”: Massive Online and Local Events Promise to Push ME/CFS Forward
ME/CFS advocacy is growing and growing. We have two groups, ME Action (join it here) and the Solve ME/CFS Initiative working pretty much in lockstep to move forward on ME/CFS. Central to both groups’ efforts are a Senate Resolution sponsored by Senator Markey...
The Dutch Surprise: Federal Report Calls for More ME/CFS Research – Less CBT/GET
A Cognitive Behavioral Therapy (CBT) Bastion The Netherlands has long been a bastion of CBT – only the U.K.’s been able to match its tenacious pursuit of the therapy. Over the past five years, Dutch researchers have published no fewer than 20...Lives Interrupted Latest Story
Megan
Randolph, United States
Former occupation: Day care worker
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