Celebrating AWARENESS – International Awareness Day 2016
“Discovering Hope”, Pace-gate (the end of CBT/GET… or not?), Do You Remember You?, the #MIssing Millions, the Long Journey – check out blogs, events, a free book and the most impactful video’s ever in a celebration of International...
Did the “Keep Psychiatry Out of the NIH Study on ME/CFS” Help or Hurt?
The “Keep Psychiatry out of the NIH Study on ME/CFS” petition has been signed by over 2,000 people and, on the face of it, it makes sense. Who would want psychiatry in one of the most important studies ever done on ME/CFS? I certainly wouldn’t. But...
The Male Pattern Baldness Disease? Chronic Fatigue Syndrome’s Chronic Lack of Research Funding
(Health Rising is publishing Jorgen Jelstad’s blog with the intent to underscore the work ahead for ME/CFS as International Awareness Day approaches on May 12th. May also happens to be the month that the NIH’s Working Group for ME/CFS will apply for...
The Long Arc of Chronic Fatigue Syndrome (ME/CFS) Advocacy
As we appear to be finally turning a corner at the federal level, Prohealth’s Advocate of the Year Award gave me the opportunity to sit down and reflect on the long arc of ME/CFS advocacy. That made me realize how dependent the successes of the present have been...
NIH Pledges Long Term Effort on Chronic Fatigue Syndrome (ME/CFS): Promises to “Stay the Course”
The NIH held a telebriefing with about 100 ME/CFS advocates, researchers and supporters Tuesday morning. This overview is taken from my notes of the meeting. The Big Three – Dr. Francis Collins, Dr. Koroshetz and Dr. Nath – were all there – and that...StudyME
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