Proposal to Vastly Increase Funding for ME/CFS at NIH Passes First Test
Vicky Whittemore went before “The Council” to present the Working Group’s proposal that the NIH vastly increase ME/CFS funding by creating a consortium of research/treatment centers to battle the disease. It was step one in the effort to create a new...
Celebrating AWARENESS – International Awareness Day 2016
“Discovering Hope”, Pace-gate (the end of CBT/GET… or not?), Do You Remember You?, the #MIssing Millions, the Long Journey – check out blogs, events, a free book and the most impactful video’s ever in a celebration of International...
Did the “Keep Psychiatry Out of the NIH Study on ME/CFS” Help or Hurt?
The “Keep Psychiatry out of the NIH Study on ME/CFS” petition has been signed by over 2,000 people and, on the face of it, it makes sense. Who would want psychiatry in one of the most important studies ever done on ME/CFS? I certainly wouldn’t. But...
The Male Pattern Baldness Disease? Chronic Fatigue Syndrome’s Chronic Lack of Research Funding
(Health Rising is publishing Jorgen Jelstad’s blog with the intent to underscore the work ahead for ME/CFS as International Awareness Day approaches on May 12th. May also happens to be the month that the NIH’s Working Group for ME/CFS will apply for...
The Long Arc of Chronic Fatigue Syndrome (ME/CFS) Advocacy
As we appear to be finally turning a corner at the federal level, Prohealth’s Advocate of the Year Award gave me the opportunity to sit down and reflect on the long arc of ME/CFS advocacy. That made me realize how dependent the successes of the present have been...StudyME
Enroll in the OMF’s StudyME project and help bring about a cure for ME/CFS, fibromyalgia, POTS and long COVID.
