(A)viva ME/CFS! Contest, Your Brain for Science, Making the Invisible Visible, the Definition Question – An Events Blog
There’s alot going on right now; check out the different events in this ‘Events blog’. Aviva ME/CFS! The National ME/FM Action Network’s May 12th Awareness Day for ME/FM submission in the Aviva contest is on the edge of winning $10,000 with the...A Tiger Awakes: ME/CFS Research Community Takes A Stand – Blasts Federal Efforts to Create Definition
Federal efforts to have an outside group create a definition for chronic fatigue syndrome hit a snag when many ME/CFS experts objected.Feds Snub Chronic Fatigue Syndrome Community…Again: Cut Experts Out, Fund Outside Group to Redefine Chronic Fatigue Syndrome
Cutting ME/CFS experts out of the process, the Fed commit to spending large amounts of money to produce a definition nobody wantsThe Definition ‘Coup’ – the FEDS Trample CFSAC – Farm Out A Consensus Chronic Fatigue Syndrome Definition To Outside Group: Action Needed
This is wrong on so many levels – Mary Dimmock, advocate and mother of a severely ill son with ME/CFS Thanks to advocates Jennie Spotila, Mary Dimmock and others for jumping on this quickly. The Department of Health and Human Services is all of a sudden in the...ME/CFS Patients Call To Action: Advocates Call for FDA to Hold ‘Real’ FDA Stakeholder’s Meeting
ME/CFS Advocates call on FDA to produce FDA Stakeholders Meeting that this time produces a clear regulatory pathway for drug development.Lives Interrupted Latest Story
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Langham, Canada
Former occupation: Heavy duty journeyman Mechanic
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