Feds Snub Chronic Fatigue Syndrome Community…Again: Cut Experts Out, Fund Outside Group to Redefine Chronic Fatigue Syndrome
Cutting ME/CFS experts out of the process, the Fed commit to spending large amounts of money to produce a definition nobody wantsThe Definition ‘Coup’ – the FEDS Trample CFSAC – Farm Out A Consensus Chronic Fatigue Syndrome Definition To Outside Group: Action Needed
This is wrong on so many levels – Mary Dimmock, advocate and mother of a severely ill son with ME/CFS Thanks to advocates Jennie Spotila, Mary Dimmock and others for jumping on this quickly. The Department of Health and Human Services is all of a sudden in the...ME/CFS Patients Call To Action: Advocates Call for FDA to Hold ‘Real’ FDA Stakeholder’s Meeting
ME/CFS Advocates call on FDA to produce FDA Stakeholders Meeting that this time produces a clear regulatory pathway for drug development.
Free Books, Webcasts, Sleepins, Skydiving for ME/CFS: It Must Be ME/CFS Awareness Day!
Twenty-one years ago today Tom Hennessey exhorted ‘CFS’ patients to unite together on the anniversary of Florence Nightingales birth to celebrate International CFS Day. Like all good ideas this one caught on and was copied with the result that May 12th...
Bob Miller Skydiving for ME/CFS Research on May 12th, International ME/CFS Day
Skydiving for ME/CFS Research. Bob Miller to skydive from 13,000 ft to support ME/CFS research on May12th, 2013.Lives Interrupted Latest Story
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